We're Home!

We are home for the weekend - we got home yesterday afternoon, and I am so happy to be here. Finn and I slept last night from 10:30 until 7:45 this morning, just waking a few times for lazy feeding, but otherwise not moving at all, it was just what we needed after a week of horrible hospital sleep. Finn was gone for hours for his tests on Wednesday. I took him down for his MRI at 6:30 (he loves riding in my lap in the wheelchair); the anesthesiologist saw us waiting and said, "Is this the baby for the MRI?" I said yes and he said, "The baby with CANCER for the MRI?" and again I said yes. "The baby with the neuroblastoma for the MRI?" Seriously? "Yes!" "Wow, he's looks really healthy." Thanks.

 I almost started to cry when I left him, especially when I bent down to kiss him and he grabbed my head and gave me a big open mouthed kiss in response, but I managed to hold it together until I was out of his sight, and then I cried. The wait for him to get his MRI, his MIGB and his bone marrow biopsy was endless, but it helped to have NannyM (as she's now calling herself!) and my sister Jamie waiting with me. It was sometime after noon before I got the call from recovery; I could hear him crying in the background as the nurse asked me to please come down there right away. She couldn't calm him down, and didn't know if he was in pain from the bone marrow biopsy or just hungry. He did calm down once I was there, but still was very disoriented and upset. We decided it was just hunger and post-anesthesia confusion that was making him so upset, and they let us go back to our room, which helped more than anything. The rest of the day was quiet; once Finn woke up we went outside for a little bit. By bedtime, Finn was happy again.

Thursday was much faster, he was to be done with his scan in less than an hour, so I waited in the surgery waiting room for him. I heard my name called from the doorway and looked up to see a nurse holding Finn, who looked drowsy, but smiled at me as soon as I got close to him. He was almost 100% within an hour - so much better than Wednesday.

Here's all the good news from the tests:
 The MRI showed no other tumors
The MIBG was negative
The bone marrow biopsy was negative

All GREAT news! The tumor causing the Horner's appears to be the only tumor, so if the surgeon can get it all, then it's a cure and Finn won't need chemo. This is such wonderful and amazing news, especially since the initial news last Friday made it sound like he had tumors everywhere. I'm so thankful for all the good thoughts and prayers for Finn this week; I'm not sure how I would have made it through the past week without them. Thank you all for such wonderful support.

His surgery is scheduled for Monday. We have to go back to the hospital on Sunday night, and then Finn has to go without eating from 7:30am until his surgery at 1:30. I'm worried about how he's going to do with that, I'm scared about the surgery, and I'm so worried about how much pain he's going to be in after surgery. But right now I'm managing to mostly focus on just loving him, so he's happy, well rested and prepared for surgery.